Discussion
This study was designed to determine, using an MCH leadership competency as an outcome measure, whether a LEND program that includes a full-time family faculty member and intensive parent led curricula can demonstrate an increase in perceived knowledge, skills, and leadership development in family-centered care. The results uniformly demonstrate that graduate trainees who participated in parent led curricula rated themselves as more knowledgeable about what constitutes family-centered care and more supportive of a family-professional partnership at the conclusion of their LEND traineeship.
Parents and families possess a unique perspective on the experience of living with a child with a neurodevelopmental disability, including particular stressors and the need for advocacy across systems. In support of those life experiences, LEND trainees reported being more likely to engage in the Basic skill of soliciting input from families in the design and delivery of services and more committed to ensuring that family perspectives have a significant role in clinical practices, programs, and policy. Additionally, trainees affirmed the important role that the family discipline had in their training and the heightened familycentered awareness it brought to their current leadership development: “The family mentorship experience was an amazing opportunity to gain a better understanding of various cultures, including the family culture and the disability culture. This understanding has influenced how I work with families.”